Wednesday, September 9, 2015
Sunday, September 9, 2012
Well since the weather has started improving, Skylar, Bennett, & I all went to a Car Show the other afternoon. It was a glorious day. The weather couldn't have been better, & the sun was just going down so Bennett didn't have to suffer w/ brightness.
He loved seeing all the cool cars & trucks. He especially liked a yellow Nova II, until the guy gunned the engine. Then it wasn't as cool, it kinda startled him.
He did like being outside though, he repeatedly said to Linda "we're outside, we're outside". It's been wicked hot so we've not been going for walks that often. We will now for sure, I wish I could find an off road stroller that he'd be comfortable in.
Bennett also had his infusion last week. I found out that Leann (his nurse) is only staying w/ Home Parental Services because of Bennett!! She is his only patient. She is also a full time nurse. She is not only the greatest nurse but also the best person. She cares for him like her own. Thank you Leann if you read this.
The picture you see is Bennett on our patio w/ the bubble machine going, he LLLLLLLLLOOOOOVES bubbles!! The new speech therapist Ann is using them to work on his W's, you know pursing your lips together?? So he gets all he wants when it comes to bubbles.
He's also spending more time on his "Blue Couch" as he calls it, sometimes w/ his tumble form seat sometimes not. He's getting better sitting up & talking & asking questions more.
Well off to work, thanks for reading & if you want a particular topic about Bennett discussed, please feel free to ask. Take care Mark....aka Bennett's Pop.
Friday, September 7, 2012
Bennett & I were having a grand old time driving around yesterday afternoon. All of a sudden out of the blue comes a major thunderstorm. The car was shaking wind was howling. He was getting a little freaked. I was right by work so I thought let's go inside .
It took less than 30 seconds to get him inside, but in that time I was soaked to the skin & he looked like someone had thrown a bucket of water on him. He cried for a couple mins then he was fine and dandy. I swear this little boy is the bravest I've ever met.
Wednesday, August 29, 2012
<p>Hello, so now that we're home from Omaha things are getting back to normal. We're working w/ Bennett on his sitting up, using words properly, etc.
So Bennett was taking a nap yesterday & had rolled completely on his stomach, well when he tried to roll back his left arm got stuck behind him & he couldn't get it out & of course broke it. I cannot believe it.
He cried for a while even after meds & splinting. I really hate this disease & Bennett's the one suffering everyday.
He's feeling much better now. Hopefully I'll have better news tomorrow.
Tuesday, August 28, 2012
I've never liked reprimanding Bennett, even when he does something that he's not supposed to.
Last nite proved the hardest time I've had to date.
We were shopping & he picked out a Lego kit he wanted, I gave in cause I said no to so many other things. It was late & he was getting tired (aka cranky). I made one last stop & was looking at something when he looked up at me & said "daddy?? I want to walk." It took every ounce of willpower not to start crying in the store. I just said to him "I know buddy, me too".
Then just as quickly something caught his attention & he forgot about it. I didn't & haven't stopped thinking about it since. Then as we were about to checkout he threw his Legos on the ground. So now I have to go into "mean dad" mode & tell him he's not getting them because he threw them, we've been having an issue w/ him throwing.
I know it's part of parenting, but it sucks especially after your disabled child asks for something they may not get.
I know there's no manual for parents, but sure wish there was.
Monday, August 27, 2012
Wednesday, March 21, 2012
Last May, we had a huge party for Benny at Wyndham. We stayed in the Presidential Suite
that was very nice. My mom, brother, Uncle Tom, aunt Linda, & my cousin Devon
& Stacy all came out. Plus several people from Panera & Wyndham, unfortunately
very few from Hilton showed up.
My boss Kyle ordered OI awareness week tee shirts for all of us to wear, he
is a great & thoughtful person. He & his boss Craig even had the entire district
selling candy bars to help offset our medical costs.
We had quite a scare, Benny had to have emergency hernia surgery. He made
it through like the champ he is. Flirting with all the nurses,
He had a few breaks last year, but in the last 6 months nothing. Truly a blessing
for that. Leann is still coming every 8 weeks. She saw him today & he did better
than ever, barely fussed when she took lab & put the IV in. Take care & will post